Beyond the pale: folklore, family and the mystery of our hidden genes
Urquhart, Emily
monographic
Open WorldCat Canadian Writing Research Collaboratory
Non-fiction Memoir
English
cwrc:a82e83f3-7886-4080-b258-aef3d7d638e1
2018-08-22T06:55:27.137Z
Emily's story begins on St. Stephen's Day, 2010, in St. John's, Newfoundland when she gives birth to a baby girl named Sadie Jane with a shock of snow-white hair. Within 3 months Sadie is diagnosed with albinism, a rare genetic disorder where pigment fails to form in the skin, hair and eyes, with accompanying maladies such as photophobia and partial blindness.Emily is drawn to understanding her child's differences by researching the cultural beliefs associated with albinism worldwide; a journey that takes her to a faraway continent, through her own family tree, and all the while unearthing discoveries that vacillate between beauty, amazement and horror. -- Amazon.